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SPINA BIFIDA et handicaps associés

Adresse association nationale :
3 bis avenue Ardouin
CS 9001
94420 LE PLESSIS TREVISE

Tél : 01 45 93 00 44

Courriel : danielle.delpierre76@gmail.com

Site internet au niveau national : www.spina-bifida.org
Facebook : Spina Bifida Haute Normandie – Danielle DELPIERRE

Président : François HAFFNER
Nom de la personne à contacter : Danielle DELPIERRE – Contact régional

Mise à jour 15/07/2024

But et objectifs :

  • Guidance parentale.
  • Information sur le handicap, sur les services proposés
  • Participation aux recherches médicales, adhésion à l’alliance maladies rares
  • Prévention

Services et activités proposés :

  • Service d’incontinence. Agrément pour fournir du matériel
  • Colloque
  • Stages

Mise à jour 24/02/2021